On behalf of the NWRSA Board of Directors, I would like to invite you to join us for a fun and relaxing experience this summer. We are calling it our NW Rett Adventure! It’s a departure from the conference style we have been accustomed to for nearly 40 years. The Rett Adventure is being designed for our families to have time in a beautiful setting to come together, have fun activities, and support each other in a way only Rett families can. If this Rett Adventure is a success, we are considering alternating a Rett Adventure every other year with a conference.

The Adventure will focus on family fun and friendship. We will have a presentation from our generous sponsor Acadia Pharmaceuticals where they will introduce their new version of Daybue called Stix.

Included in your registration fee is:

1) A picnic at McEuen Park near the waterfront under a pavilion with an adjacent wheelchair accessible playground and splashed.
2) An afternoon cruise on Lake Coeur d’ Alene.

We will also have a no-host family night out dinner downtown. Additionally, here are just a few activities attendees may enjoy doing at their leisure between the planned events:
Triple Play Family Fun Park,
 The Coeur d’ Alene downtown carousel,
 Seven Stars Alpaca Ranch,
 Atlas Park
, Falls Park in Post Falls, ID
, Silverwood Theme Park ~ in Athol, ID

So many things to see and do in CDA !

We realize costs for almost everything has increased over the last several months, and we want the NW Rett Adventure to be more affordable. With a generous Acadia sponsorship and prior fundraising are happy to offer the following prices:

Adults (18 and over) ~ $50 
6 -17 years old ~ $25
 Rett children & ages five and under are free

After June 30th, the prices are:
Adults (18 and over) ~ $75
6 -17 years old ~ $50
Rett children & children five and under are free

We are working towards providing scholarships for families who have not previously attended a NWRSA event. See contact information below for more information.

NOTE: RESPITE CARE WILL NOT. BE PROVIDED AT THIS EVENT

Please consider booking a hotel room for July 16th to July 19th. We have a block of rooms at the following hotels:
Best Western Plus Coeur d’ Alene Inn ~ 506 West Appleway Ave., Coeur d’ Alene 208-765-3200

La Quinta Inn & Suites ~ 333 W. Ironwood Dr., Coeur d’ Alene 208- 286-1224

If you have specific needs and/or have questions about the event please contact the NWRSA at: ssutherland@nwrettsyndrome.org or jburr@nwrettsyndrome.org

Visit us at: www.nwrettsyndrome.org or https://www.facebook.com/NWRETT/

We are looking forward to seeing you in Coeur d’ Alene.

John Burr

The NW Rett Syndrome Adventure starts at 11:00am on Friday 7/17/26 at McEuen Park
420 E. Front Street, Coeur d’ Alene. The Lake Cruise is scheduled for 3:00pm (boarding at 2:30pm) on 7/18/26